May 1, 2011

Changes...

This coming Wednesday Porter is getting his GTube replaced into a Button (aka: a Mic-Key) and....
After 4 years and 2 months, Porter is officially off of his TPN!!!! Yes, I said he is OFF his TPN!

Now we are monitoring him for a couple of weeks and if his levels stay good off the TPN his central line will get replaced with a Port (so funny to think of Porter getting a Port, eh?)...woohoo!

Oh and this is something cute Porter did tonight as James tucked him into bed after hooking up his GTube/Elecare. Porter has been so used to having his TPN backpack every night that he said to James;"Backpack missing?" James told him he didn't need it now, but he asked about his backpack again.

So many new changes and still Porter smiles daily and keeps us giggling and feeling blessed. He teaches us daily and we are so proud to be his family.

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