May 31, 2011

For SURFERS HEALING....

Please endorse for SURFERS HEALING ...click on this orange box (endorse now)below and go to the site and follow instructions. FREE and EASY!

Vivint is giving away $1.25 Million to charities. Help us win!

Porter wants to attend the VB Camp Aug. 20th and wants to help raise money for this non-profit organization.

Surfers Healing was founded by Israel and Danielle Paskowitz.Their son, Isaiah, was diagnosed with autism at age three. Like many autistic children, he often suffered from sensory overload-- simple sensations could overwhelm him. The ocean was the one place where he seemed to find respite.
A former competitive surfer, Israel hit upon an idea--with Isaiah on the front of his surfboard, and Izzy steering from the back, the two spent the day surfing together. Surfing had a profound impact on Isaiah. Israel and Danielle decided they wanted to share this unique therapy with other autistic children. They began to host day camps at the beach where autistic children and their families could be exposed to a completely new experience of surfing.

May 30, 2011

little vignettes...

This is the bar in our house. I have a thing for birds, nests, eggs, teacups, glassware and vintage shabby chic.





May 5, 2011

more wedding stuff...

1. Definately having a huge fruit platter.

2. Like this simple way for the food to be served....we'll do this.
3. Really like this idea of everyone writing messages to Lauren & Nick on stones....hmmm.


May 1, 2011

Changes...

This coming Wednesday Porter is getting his GTube replaced into a Button (aka: a Mic-Key) and....
After 4 years and 2 months, Porter is officially off of his TPN!!!! Yes, I said he is OFF his TPN!

Now we are monitoring him for a couple of weeks and if his levels stay good off the TPN his central line will get replaced with a Port (so funny to think of Porter getting a Port, eh?)...woohoo!

Oh and this is something cute Porter did tonight as James tucked him into bed after hooking up his GTube/Elecare. Porter has been so used to having his TPN backpack every night that he said to James;"Backpack missing?" James told him he didn't need it now, but he asked about his backpack again.

So many new changes and still Porter smiles daily and keeps us giggling and feeling blessed. He teaches us daily and we are so proud to be his family.