I went to Sports Med today and bought more supplements, biomeds, and pro biotics for P-Man today...here's the list of what Porter is now on and will be on soon:
•MEDICATIONS/BIOMEDS/PRO BIOTICS/SUPPLEMENTS:
Zinc Sulfate
Ferrus Sulfate (Iron)
Zyrtec
Prilosec
L-Carnitine
Biotin
Polyvisol
Diflucan
Kid’s Brite (Omega 3)
Calcium Citrate
Vit C
Pea Protein (w/ vit D)- (to replace milk protein)
Just got today:
Kid’s Brite (Omega 3)-re-order
Colostrum
Cod Liver Oil Liquid
ProBio Defense
Activated Charcoal- (for yeast die off)
Milk Thistle
Super Nu Thera w/out vit. A&D
Glutathione (cream)
GABA
Selenium
COQ10-(on order)
Will be on once Dr. Madren writes a script for them:
Cholestorol
Arginine
Chondroitin Sulfate
Alpha-ketoglutaric acid
Taurine
N-acetyl glucosamine
These are all items Porter needs. After doing the tests and seeing what is low or high in his body, these will help his little body heal and feel better.
We are also weaning him slowly off Gluten. Caesein and Soy have been eliminated from his diet now. He is still on TPN nioghtly feeds, but needs to eat more by mouth, so he can eventually come off TPN. The IVIg therapy will continue for his entire life to keep him alive though.
He has an Augmentative Communication screening towards the end of this month and continues with Speech and OT and Pre K.
He will be getting an Attendant next week and will work on some ABA therapy.
Come summer...Hyperbarics!
Whew!!!
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